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There are handwritten “surveillance” sheets from the city’s Municipal Archives, tabulating infections by race and age, “working with groups who until the late s had been treated like.” There is a hospital document setting out guidelines for dealing with “specimens from AIDS patients” (“extraordinary care must be taken to avoid accidental wounds”). And there are video excerpts from the premiere of Kramer’s acerbic, bitter play about the time, “The Normal Heart.” In the early years of the plague, we are reminded, AIDS puzzlingly appeared in what was widely ed the H’s: homosexuals, heroin addicts, hemophiliacs and Haitians. Victims also included (and a companion exhibition, “Children With AIDS: Spirit and Memory,” with photographs by Yaffa, is running concurrently at a gallery down the hall). But the concentration of men among the ill was evident from the start. Beginning in the late s doctors began to report unusual spikes in sexually transmitted diseases in populations. Then once rare cancers, like Kaposi’s sarcoma, along with pneumocystis pneumonia, started to appear and wreak havoc. Mass, one of the early New York physicians to recognize a problem, contacted the Centers for Disease Control in Atlanta in to inquire if rumors of a disease were true; the rumors were denied, and we the text from an issue of The New York Native from that in which Dr. Mass reassures readers. But by the problem was acknowledged in the Centers’ publication, Morbidity and Mortality Weekly Report, also on display. But there was still nothing tying of these illnesses together. Another doctor who had recognized the onset of these medical issues, Mildvan, was sitting at lunch with a colleague when they realized, she said, that the infections they were discussing “resulted from immunocompromise.” “We had no idea of how this would develop,” she says in an interview quoted in the exhibition, “but we were.” So, among a group that had only recently begun to taste the possibilities of openness, including some who had indulged in that freedom with abandon, there came this disease that assaulted that very way of life, attacking not just the body but the core of a nascent identity — and ultimately challenged sexual license. Billings fucking videosFor one thing, Leavitt’s mother suffered from early-onset Alzheimer’s. She was diagnosed at a relatively age — 52 when her symptoms became obvious — and her illness progressed quickly. She passed away after turning 60. (My grandmother was 90 when she died). Before Alzheimer’s, Leavitt’s mother was a whip-smart, active, and engaged woman. She had attended Radcliffe College, was a renowned teacher in Canada, and ended up working for the New Brunswick government designing the curriculum for all of the kindergartens in the providence. There’s something particularly painful about watching a brilliant mind dissolve. And although researchers believe that keeping the mind active can actually delay Alzheimer’s, Leavitt’s mother was still working when her mind deteriorated. The fact that Leavitt’s mother was such an intelligent, quick-witted woman meant that she was quite aware that she was losing her faculties. That awareness made the process all the more difficult for her; she was angry and bitter and lashed out at those closest to her. She didn’t want to need their help. Caring for someone with Alzheimer’s is no easy task, and Leavitt doesn’t shy away from sharing how hard her mother’s illness was on their family. The disease is particularly difficult on caregivers who are related: spouses, siblings. As Leavitt bravely reveals in Tangles, suddenly the boundaries and intimacies that previously defined those relationships began to blur. At some point her parents’ room is no longer their sanctuary; her mother’s naked body is no longer reserved for her husband’s sexual gaze. Sexuality itself loses meaning. In so ways, his wife is no longer his and no longer a wife. She reverts to an almost infantile stage but remains in the body of an adult woman, making caring for her at home increasingly difficult. In disrupting relationships and stealing away the loved one’s soul, Alzheimer’s often leaves caregivers grieving years before the person’s body finally succumbs to the disease. There is one silver lining to the progression of Alzheimer’s: Eventually Leavitt’s mother is no longer aware of her illness and what it is costing her. With the loss of her cognitive functions, her anger dissipates. extreme massage
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